Journées Scientifiques de la Fédération des CRCM -2009

Les présentations des Journées Scientifiques 2009 sont disponibles sur l'espace privé du site de la Fédération.

Pour demander vos identifiants, consultez cette page

23e congrès nord-américain (NACF conference) - Octobre 2009

Pour voir les vidéos des différentes sessions plénières, rendez-vous sur le site officiel du congrès nord-américain .

Première session plénière : "Two Decades of CFTR Research: From Gene Discovery to Therapeutic Target"
	Robert J. Beall	Welcome
	Francis S. Collins	Cystic Fibrosis in 2009 : Lighting the Path Forward
	Steven M. Rowe	Two Decades of CFTR Research : From Gene Discovery to Therapeutic Target
Deuxième session plénière : "Inflammation & Infection : Update on the Pipeline"
	Michael W. Konstan (presented by James Chmiel) Lisa Saiman	Inflammation & Infection : Update on the Pipeline
Troisième session plénière : "Early Airway Infection in Young Children with CF - What is the Optimal Therapy
	Bonnie W. Ramsey	Early Pseudomonas aeruginosa Airway Infection in Youg Chlidren with CF : What is the Optimal Therapy ?
	George Z. Retsch-Bogart	Safety and Efficacy of Anti-Pseudomonal Therapy for Early Eradication of Pseudomonas :the EPIC Study
	Claire Wainwright	Australian Cystic Fibrosis BAL Study Interim Analysis

32nd European CF Conference, Brest, Juin 2009

Communications des CRCM du Réseau Muco Ouest

Centre de Référence de Nantes

• PTS' role in the Caring of CF Patients in France in 2009 - Claudine Lejosne et al.
• Characterization of CF Diagnosis Annoucment Practices following a Neonatal Screening in France - Laëtitia Gueganton et al.
• A Way in Therapeutic Education for the Children with CF and their Family - Colette Berville et al.
• Pedagogic Drivers in Therapeutic Education for Patients with CF - Colette Berville et al.
• Conceptual Approach of an Educational Evaluation System for Patients - Colette Berville et al.
• Participation de Valérie David :
  • Symposium 5 (Psychosocial Nursing - CF in the Family) : "Involving Youg Children in their Care" (How patient education can help young children to integrate care in their life, being centered on the children's needs to improve their motivation)
  • Table ronde "How to organize therapeutic education for children with CF and their family from dignosis by neonatal screening to transition to adult care"

CRCM d'Angers

• Immuno-reactive Trypsine and extern pancreatic status in CF patients - E. Chaillou et al. - Présentation orale
• Mineral Bone Density in Children and Bone Status of Adults with CF - E. Colin et al. - Présentation orale
• Fibrosis Blood Tests to Detect Liver Disease in Patients with CF - AC Wagner et al. - Poster
• Transition from Paediatric to Adult: Experience of a CF Care Center - AC Malbrunot-Wagner et al. - Poster

CRCM de Rennes

• Decreased IL-8 secretion and expression by fluvastatin in primary human macrophages and in the whole blood from adult patients with cystic fibrosis - Chantal Belleguic et al.

CRCM de Roscoff

• The genealogical contribution to the understanding of the diffusion processes of the CFTR Mutations: the case study of 1717-1G->A in Brittany - Nadine Pellen et al.
• Singing and CF: a Pilot Experience at Centre de Perharidy - Anne Dirou et al.